Advocates, Medicaid recipients and their family members gathered outside the Capitol Tuesday to urge both state and federal lawmakers to “protect and expand Medicaid now.” 

Speakers, who held signs with slogans such as “pro-life span,” included representatives from the Mississippi Coalition for Citizens with Disabilities, members of Care4Mississippi, parents of children on Medicaid and one 9-year-old girl. 

Their presence was in response to recent federal action that threatens Medicaid funding nationwide. In February, the U.S. House of Representatives passed a budget resolution that calls for the committee that oversees Medicaid and Medicare to cut $880 billion over 10 years. 

“This budget may not explicitly mention Medicaid, but the math is clear,” said Pam Dollar, executive director of the disability coalition. “Lawmakers cannot meet their aggressive cuts without slashing Medicaid or Medicare. Even if they cut everything unrelated to health care, they would still be $600 billion short. In a state that prides itself on being pro-life, how can we stand by and allow this to happen?”

There are currently over 600,000 Mississippians enrolled in the program. Medicaid covers half of Mississippi’s children, three in four of its nursing home residents and three in eight people with disabilities, according to KFF. 

Susan Stearns traveled from Oxford to speak at the rally. She’s used to driving – and routinely makes a two-hour round-trip car ride every time her son Oscar is in need of a pediatric specialist. 

Oscar and his twin were born prematurely, causing Oscar to develop cerebral palsy, a seizure disorder and blindness. The Stearns’ first medical bill from their sons’ stay in the neonatal intensive care unit was $5.7 million. 

Stearns, a professor at the University of Mississippi, and her husband work full-time and have private insurance, which does apply to Oscar – but doesn’t address the gamut of his needs. 

“Commercial insurance is designed for helping when you’ve broken a leg, or you need your gallbladder removed,” Stearns explained. “It is not prepared to deal with long-term, intensive care needs.”

Oscar accesses Medicaid through what’s called a disabled child living at home waiver, which helps pay for nursing care and therapy for Oscar during school. It also pays for equipment and services that allow the Stearns to give their son care at home. Without it, Oscar would need to go to a pediatric nursing home – of which there are currently none in Mississippi, though one is projected to open in Jackson later this year. 

“Without the waivers, where can these kids and their families look for the support they need?” Stearns asked. “How can their parents hope to keep their families together and their children happy and healthy? How will Mississippi have failed them?”

One 9-year-old girl named Luciana gave testimony of how Medicaid helps her. She’s aware that the conditions she has – including autism and ADHD – are expensive. She says Medicaid saved her life during her stay in the NICU and now helps pay for medication that helps her think. 

“If I didn’t have my medicines I’d feel like a blank piece of paper without any drawings,” she told the crowd. 

Since Mississippi has not expanded Medicaid, advocates fear that any cuts to the federal program will affect the poorest of the poor, pregnant women, children, seniors and those with disabilities in Mississippi. 

“It is long past time to stop using the most vulnerable to subsidize the least vulnerable,” said Jayne Buttross of the disability coalition. 

Another Medicaid rally will be held on the south steps of the Capitol on March 18 at 1 p.m. 

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